tag:blogger.com,1999:blog-2644538309673050572.post8828287176870784674..comments2024-03-28T05:52:50.399-04:00Comments on Autism with a side of fries : When we crackEileen Shaklee http://www.blogger.com/profile/04658354442888448425noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-2644538309673050572.post-39942097622928863832018-05-29T07:43:25.178-04:002018-05-29T07:43:25.178-04:00I don't know what to say other than everyone n...I don't know what to say other than everyone needs a break from time to time. It's normal to need some self care time. I think it's healthy for the long run to listen to the body's signals and plan some self care activities...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-37630990708966470642018-04-03T07:33:50.389-04:002018-04-03T07:33:50.389-04:00I know your boy is in his teens - so is mine. It ...I know your boy is in his teens - so is mine. It seems this phase has been the worst of all of the ages - even moreso than the toddler years. At least in the toddler years, you EXPECT difficulties - even with typical kiddos. I have another typical teenager at home, and people always talk about how the teenage years are the worst (and I mean with typical kids). Honestly, my younger son has been a piece of cake, but my older son (ASD) is definitely making up for it. The OCD, the noise, the hormones, - it's exhausting, draining, depleting. I pray for strength and patience every day. And most recently, I have amped up my time to read. Just for myself. It's a little escape - even if it's just 30 minutes a day. I sit outside where it's quiet and just escape. Sending you hugs!Jennoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-23549019029468670162018-03-29T13:03:23.627-04:002018-03-29T13:03:23.627-04:00I'm with you too. What other job comes with no...I'm with you too. What other job comes with no days off ever? Nobody else other than me (and his fantastic school) can handle my son. It feels pretty lonely sometimes doesn't it? The only thing that keeps me going is trying to look after myself as much as possible while my son's at school: I take naps, walk, meditate and sit in cafes reading! I adore my son and it is gruelling looking after him. Thanks for bringing this subject up. Love to you allAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-60101244408064053152018-03-27T09:04:22.027-04:002018-03-27T09:04:22.027-04:00Glad i found your blog,doing a desperate google se...Glad i found your blog,doing a desperate google search. Thank you, i can get this off my chest.Son Repeating negative phrases on a loop in a horrible purposeful voice over and over and over and over etc and again. Any comment from me and it gets worse if that is possible. Its like torture. I am an autism torture survivor with the only thing left is a sense of humour. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-20913036474315513982018-03-27T08:43:07.513-04:002018-03-27T08:43:07.513-04:00You are not alone, at all. My adult son rants horr...You are not alone, at all. My adult son rants horribly and paces, over and over and over again. It is unbearable. I pray for it to stop. I think its sent me crazy. Virtual compassion sent to you from ranty crazy towers. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-42134225120698255672018-03-26T14:24:19.756-04:002018-03-26T14:24:19.756-04:00Can you hire, beg, or borrow anyone else to come i...Can you hire, beg, or borrow anyone else to come into your house for a couple of hours? Just to make sure that kiddo doesn't get into trouble so you can go take a hot bath. Keep him home with his preferred routines, and you are physically present, but unless their is blood - leave you with some time alone and pressure free. Ask around therapy and see if anyone will come stay for $$ ( if that's an option). If there are peer helpers at school, can any of those kids be trusted to run point if you are still available? Please Momma Fry, you gotta find a way. If you crack, so will he. Love from a mom with a quirky set of boys!Chttps://www.blogger.com/profile/15307485687924792068noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-29440064804410353332018-03-26T12:13:37.157-04:002018-03-26T12:13:37.157-04:00Such a handsome young man!Such a handsome young man!pianoroxhttps://www.blogger.com/profile/08139453264320054691noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-3458090292481830662018-03-25T13:45:57.831-04:002018-03-25T13:45:57.831-04:00Wow. I can relate we don't have any sitters. I...Wow. I can relate we don't have any sitters. I've got two boys with fragile X syndrome and one has autism as well. They feed off of each others meltdowns sometimes. My husband just hollors feel like he doesn't except our boys. So everything that happens its your kids or he goes off on me. We have four children 2 girls and 2 boys. But my only break is I work a few hours on the weekends other than that it's me 24/7. A good cry does help. Be nice to have a friend close to go out with and talk to but I have none. HugsMelissa Simpkinsnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-47225859709346827382018-03-25T12:03:32.944-04:002018-03-25T12:03:32.944-04:00I'm a single parent of a 20 year old. A family...I'm a single parent of a 20 year old. A family member told me I worry to much, but how can you not! He has seizures really bad so if he's away from me my phone is charged and a permanent attachment. I've buried my feelings because if Mommy is upset he is. My memory for anything is in the toilet! It scares me how I can't remember things. I believe it's from years of stress. I do worry if he's with someone else simply because he hears my voice if he's in a meltdown. A few times I have gone to a movie. This has kept my mind busy and my only form of escape. However, this happens so rarely. I have found comfort in your blog and the comments posted. While I have no answers for you, I hope you find comfort in my comment that you are not alone. You are a great Mom always remember that. Barbarahttps://www.blogger.com/profile/06994647357013312274noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-70817427146931213682018-03-25T10:10:49.304-04:002018-03-25T10:10:49.304-04:00I totally understand what you are saying and comin...I totally understand what you are saying and coming from. I can’t remember the last time I had a break. No I can’t just leave my child with just anyone or even family. Right now we are working on his sleep schedule. Trying to get him on a sleep schedule that is I guess what you would say normal. He now wakes up at 3:00 pm and is up till 5:30 am. Now we are working on getting him to bed by midnight and waking him up by noon. It’s extremely hard because this is a routine change. And yes he talks about it a million times a day. So let me tell you Mamma Fry you are awesome and doing everything right. It’s not easy all the time. Our son is 20 now and yet we still have challenges all the time. Again you are amazing and doing a great job with kiddo. You deserve a break but I know how you feel about that. I also feel guilty if I want to take a break. We Autism moms are the best and need to stick together so we can get thru the tough days and share the great days. Please hang in there. I am. Big hugs �� for you. Deborah Annhttps://www.blogger.com/profile/17709045706702585932noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-69792739553084223632018-03-25T09:24:57.278-04:002018-03-25T09:24:57.278-04:00I actually just switched my antidepressant to one ...I actually just switched my antidepressant to one that also deals with anxiety. It’s jusy so much all the time. I’m also a full time middle school teacher and, oh yeah, a wife and me! Sometimes all we can do is binge coffee, chocolate and ugly cry to deal with what’s on our shoulders. We’re doing the best we can but the reality is, it’s never enough and we just keep cracking. ❤️☕️��Jenhttps://www.blogger.com/profile/08059428126469567332noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-6345680620452605582018-03-24T21:56:17.490-04:002018-03-24T21:56:17.490-04:00I wish I had a solution or some great advice. I ca...I wish I had a solution or some great advice. I can only say “I understand”. My situation is at a different stage. My son is 21. He’s verbal and considered high functioning. He is having the HARDEST time transitioning to adulthood. He’s struggling in remedial level college courses at the community college. He’s struggling to get a driver’s license. He’s struggling to find a job. My hubby and I love and support him unconditionally. We try so hard to stay positive and to put on a brave face for him. The truth? Some days autism just “breaks” me. Every single day I worry about what will happen to him after we are gone. Every. Single. Day. It’s perfectly ok to “crack”. How can we NOT? I hope you realize just how many people you are helping with this blog. It makes us feel less alone. cf3smomhttps://www.blogger.com/profile/14017658473844145847noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-44263570605479270302018-03-24T21:32:39.712-04:002018-03-24T21:32:39.712-04:00No one has a right to judge your journey. Ever. We...No one has a right to judge your journey. Ever. We can love our kids and still have personal needs. WE ARE HUMAN. And we all need to regroup from time to time. My kids are 21 and 19 and when I didn't take a break, I was a very unhappy person and I began to resent everything about my life, even the good things in it. Anytime you can steal, beg or borrow, please do it before you crack somebody upside the head. ;-) Love -Karen Karen Wesley Writeshttps://www.blogger.com/profile/02337598132381046024noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-80939589968808526082018-03-24T21:08:10.053-04:002018-03-24T21:08:10.053-04:00Sometimes when I’m near cracking I take mine to th...Sometimes when I’m near cracking I take mine to the doctors. I say help soemething is up. For my allergic boy who doesn’t communicate well, it’s often sinus or ear infection. Other times they don’t have a clue. And we carry on because we have to. I too hide out in the bathroom when nearing the end of my rope. It’s now equity with chocolate, scented candles, and snacks. Lol. Yup, I keep comfort foods under my bathroom sink because sometimes I just need a few seconds of me time. Jenhttps://www.blogger.com/profile/05728841321892872450noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-34369724424242252052018-03-24T19:45:25.063-04:002018-03-24T19:45:25.063-04:00Go ahead and "crack"... allow the "...Go ahead and "crack"... allow the "kiddo" to see it...allow him to understand your frustration...it might help him to understand that you don't always have the answers nor do you always have the ability to cope...allow him to see it's not only he that has meltdowns...it might teach him coping on his own. My son saw me lose it...he saw me crack, and he attempted to sooth me...we had a "moment", if you know what I mean...he looked at me...he "saw" me...and we were better...we weren't perfect, but we were better...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-92143100542390672852018-03-24T19:20:24.384-04:002018-03-24T19:20:24.384-04:00There are days where I feel like I am going to los...There are days where I feel like I am going to lose my mind and I pray for bed time just so I can get some quiet time to come down from the day. I feel the pain.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-35436878513465969842018-03-24T18:43:51.583-04:002018-03-24T18:43:51.583-04:00I am right there with you Mama, we have no respite...I am right there with you Mama, we have no respite either! I feel your painAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-67188747275941564832018-03-24T18:41:29.965-04:002018-03-24T18:41:29.965-04:00I am a single mom with a 12 year old autistic son ...I am a single mom with a 12 year old autistic son who is bigger than I am. I take the blunt force of everything. Every scar on me is a reminder of a meltdown that I survived. I have locked myself in the bathroom, attempted to call for reinforcements (his dad) which doesn’t happen often. I take it day by day, sometimes hour by hour or just a minute at a time. We had a bad week this week and I dropped him off at his dads yesterday. I told him that it wouldn’t end well if I couldn’t get 24 hours of peace. It’s hard being a special needs mom. I don’t get time for myself like everyone else. I don’t have a million people I can call on to come to the rescue. Just breathe, try to do your best and I cry (a lot). Hang in there. Michellehttps://www.blogger.com/profile/05215741626662618364noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-72356806813972174772018-03-24T18:34:17.792-04:002018-03-24T18:34:17.792-04:00At the moment just me breathing is enough to set m...At the moment just me breathing is enough to set my son off. God help everyone if me and his sister are both breathing! I cannot offer any pearls of wisdom about how to recharge. But I hope a massive snotty, messy, eye puffy sobbing mess of a cry, an extra strong coffee and knowing that others are also walking this path and have your back (as much as I can from the UK) helps. XX Stay strong Mama Fry.NicolaEWhttps://www.blogger.com/profile/06667810832374784334noreply@blogger.com