tag:blogger.com,1999:blog-2644538309673050572.post5786854827311290524..comments2024-03-28T05:52:50.399-04:00Comments on Autism with a side of fries : A letter to the new autism parentEileen Shaklee http://www.blogger.com/profile/04658354442888448425noreply@blogger.comBlogger37125tag:blogger.com,1999:blog-2644538309673050572.post-21915107564701616042018-05-20T13:14:01.240-04:002018-05-20T13:14:01.240-04:00Hi! I just found your blog and am including a link...Hi! I just found your blog and am including a link to your wonderful letter to parents in a freebie I made. I hope you don't mind! I'm an SLP who gives communication advice, but there is nothing like the point of view of a parent who is living it! Thanks so much for sharing real life in such a well written way!Looks Like Languagehttps://www.blogger.com/profile/04201819371635458816noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-76238382943762601402018-01-12T20:38:13.398-05:002018-01-12T20:38:13.398-05:00By the way... i did #11 yesterday afternoon. Booho...By the way... i did #11 yesterday afternoon. Boohooed like a little girl.Stephanies Swamphttps://www.blogger.com/profile/12943575304378531459noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-9087681500482308452018-01-12T20:33:51.768-05:002018-01-12T20:33:51.768-05:00This comment has been removed by the author.Stephanies Swamphttps://www.blogger.com/profile/12943575304378531459noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-2492396668967396992017-04-21T06:46:07.905-04:002017-04-21T06:46:07.905-04:00I stumbled upon your blog while researching a stor...I stumbled upon your blog while researching a story about autism awareness for my employer. What a great set of tips. Thanks so much for sharing. And delightfully written. Anonymoushttps://www.blogger.com/profile/12777701261470199363noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-77116727386372653082014-02-01T12:25:38.080-05:002014-02-01T12:25:38.080-05:00Loved number #11. We go a mile a minute, exhaust o...Loved number #11. We go a mile a minute, exhaust ourselves to the point where we want to scream and we forget WE CAN! We forget to take care of ourselves, get a pedicure, take a hot bath, even we need time outs :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-12387059184677363892013-11-18T21:00:45.231-05:002013-11-18T21:00:45.231-05:00My 13 y.o. son was diagnosed in August. I thought ...My 13 y.o. son was diagnosed in August. I thought the world was going to be coming up roses from then on, because we finally had the diagnosis. I really needed #11 today. Thank you. Glad I found you. Noelhttps://www.blogger.com/profile/09915004197200364909noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-48445668135185016952013-11-08T15:39:44.017-05:002013-11-08T15:39:44.017-05:00From a parent who has just had their child diagnos...From a parent who has just had their child diagnosed THANK-YOU,for helping me realise I haven't just fell into a big black hole... Keep up the good work :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-53263189153828918092013-06-07T19:19:34.775-04:002013-06-07T19:19:34.775-04:00I could totally use some help about finding some o...I could totally use some help about finding some of those autism groups with chat rooms and such. I have been navigating through this last year since my daughters diagnosis on my own and I need some help, or at least someone to vent to and so i know I am not alone.<br />Anonymoushttps://www.blogger.com/profile/13345793248923464038noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-71345246078539545352013-03-07T09:09:35.775-05:002013-03-07T09:09:35.775-05:00Great advice! I love the sentence about the Melato...Great advice! I love the sentence about the Melatonin kicking in... snort.Jenlynn Travel Adventureshttps://www.blogger.com/profile/08091634090365382938noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-21467188620322017652013-02-28T09:58:52.702-05:002013-02-28T09:58:52.702-05:00God, this is like you got in my tired, confused, o...God, this is like you got in my tired, confused, over caffeinated brain and somehow still read it. You officially get a link on my blog now. Know what I like to say (and laugh like a crazy woman) when asked how I do it all?..... YOLO!!!! (Muahahahehehehehahahahahehehehehaaaa)Anonymoushttps://www.blogger.com/profile/04165197547463677105noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-871032832148758622013-01-15T12:45:40.289-05:002013-01-15T12:45:40.289-05:00I just love this! I've been at it for some tim...I just love this! I've been at it for some time, but still need to revisit this advice frequently.<br /><br />I also wrote a "guide" for those of us deep in the trenches: <a href="http://www.whac-a-mole-life.com/2012/09/meditation-for-autism-mom.html" rel="nofollow">Meditation for an Autism Mom</a>.<br /><br />***Why haven't I spent more time on your site? Problem corrected starting now. WhacamoleLifehttps://www.blogger.com/profile/03859531985217484640noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-9340725227142968022012-12-29T09:58:54.884-05:002012-12-29T09:58:54.884-05:00Amazing, thank you very much for your help and you...Amazing, thank you very much for your help and your support, us parents who are new to this need more people like you! thank you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-30181163463131232322012-12-21T09:26:42.289-05:002012-12-21T09:26:42.289-05:00All of this is very good advice. We just hit the t...All of this is very good advice. We just hit the two-year post diagnosis mark, and I wrote this post on what NT parents should know about autism: <br /><br />http://www.momintwocultures.com/2012/12/what-you-need-to-know-two-years-out.htmlMom on the Edgehttps://www.blogger.com/profile/11860830422468493807noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-50481353092802742782012-12-19T10:51:12.246-05:002012-12-19T10:51:12.246-05:00couldnt agree with you more its hard but the baby ...couldnt agree with you more its hard but the baby steps along the way are very important to celebrate their progress. Anonymoushttps://www.blogger.com/profile/10446359078216485812noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-89081461471789368892012-12-19T10:50:14.875-05:002012-12-19T10:50:14.875-05:00great post it helps people better understand this ...great post it helps people better understand this new life. Its a rough road but i have found with my son who is autistic that the older he gets the easier it gets and that may not be for everyone but since he's gotten older he's had very little meltdowns and we can take him to more louder places too. But the one thing that hasn't changed is if you tell him you are going to a certain place you better go straight there cause if you don't meltdown city. i am your newest followerAnonymoushttps://www.blogger.com/profile/10446359078216485812noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-26655401784631937452012-12-18T07:25:38.765-05:002012-12-18T07:25:38.765-05:00Thank you for this! I'm kind of new to the Au...Thank you for this! I'm kind of new to the Autism Mom community (just joined in April). As I'm reading this, I feel as if I'm reading my own thoughts!<br /><br />My first 6 months in this process, I dedicated myself to learning "What the hell is Autism?" Now, I'm trying to take the next step and find people (or bloggers) who I can relate myself with - I am not alone here :) <br /><br />Thanks for this letter! It is much appreciated!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-14260748252457460942012-12-17T19:22:57.375-05:002012-12-17T19:22:57.375-05:00Excellent advice, been doing this for 8 years, onl...Excellent advice, been doing this for 8 years, only way is one day at a time. Little things are celebrated, such as finally toilet training or going to a fast food place without a meltdown. Always be patient and hang in there. Celebrate all the baby steps of progress they do add up.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-43063493599299776762012-12-17T15:22:39.648-05:002012-12-17T15:22:39.648-05:00we got our diagnosis last thursday after 18 months...we got our diagnosis last thursday after 18 months of waiting and whilst we were waiting all our focus was on getting a diagnosis, now we have a diagnosis and the waiting is over we have just realised that life actually carries on after the " your child is on the autistic spectrum". i am drowning in the "well, what do i do know" place but this is a lifeline, if only the peadiatrician had given me a copy of this instead of the mountain of useless info they did then maybe i would be fumbling in the dark with the light switch at the tip of my fingers intead of drowning in the deep with only the down calling me. thank you very much.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-15145491037861668692012-12-17T12:27:53.999-05:002012-12-17T12:27:53.999-05:00I've never gotten any flack, but then I have a...I've never gotten any flack, but then I have a spiel all ready if anyone opens their mouth after looking at me sideways. People soon learn to keep their mouth shut if the first hint of something is going to get them a deluge of words like apraxia and echolalia and diagnosis etc. And if that wouldn't stop them seeing me do the happy dance while informing them of the latest milestone ends any negative discussions. But then I can be a little too comfortable with oversharing :DDeannanoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-29388044400970220412012-12-14T14:22:06.117-05:002012-12-14T14:22:06.117-05:00You hit a bullseye with this! Remember new Club A...You hit a bullseye with this! Remember new Club Autism parents, from an old vet.... once upon a time this was all so confusing, overwhelming and I had no idea where to turn to or who would help. I found patience and tenacity I didn't know I had, and before I knew it, kiddo was 18 years old, and I surprised myself dishing out advice to those who were asking me. How did I get there? One day at a time learning along with my child. Sometimes, it's one minute at a time, through gritted teeth, the 12th hour of Barney, stripping batteries from the half dead flashlight in order to buy five more minutes of operation out of the keyboard. You will do fine as well, and find yourself when your kid is 18 looking back wondering how you got that far that fast. My kiddo Baby Mozart and I wish you much luck, light, and joy as you do!Phoenixa Solhttp://www.facebook.comnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-2004507533039155022012-12-14T13:45:41.906-05:002012-12-14T13:45:41.906-05:00You are awesome!!!!!! I think this should be hand...You are awesome!!!!!! I think this should be handed out with the diagnosis. :DSheilahttps://www.blogger.com/profile/16088648997897145149noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-23504694307902399372012-12-14T13:04:43.843-05:002012-12-14T13:04:43.843-05:00I don't have kids with autism but a friend of ...I don't have kids with autism but a friend of mine does. I pray for you all daily. You all seem so strong. I came here looking for gift ideas as she is a single mom with two boys. Thanks for your advise of cashAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-67291142616672252022012-12-14T12:56:59.825-05:002012-12-14T12:56:59.825-05:00LOVE this with one exception - Google was my frien...LOVE this with one exception - Google was my friend. As a matter of fact, I got my PhD in goodle years ago. Our son is 9 now, and I was constantly being told that there was nothing amiss. I learned a world of info via internet. Also - TRUST YOUR GUT. And keep fighting the good fight, you're the best and sometimes only advocate for your child.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-72640083678576827072012-12-14T12:32:34.764-05:002012-12-14T12:32:34.764-05:00I totally, wholeheartedly agree with #10! Get you...I totally, wholeheartedly agree with #10! Get your autism child out in the world, seeing and doing things. It might make things easier or it could always be difficult to take your child to a certain place, but you're doing it, you're making the effort.<br />Spot on post, per usual, Mama Fry! xoxo!Ditzyhttps://www.blogger.com/profile/01109022422702710127noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-49032797743121541732012-12-14T12:24:35.439-05:002012-12-14T12:24:35.439-05:00YES times 11!!!!! You show great wisdom my little...YES times 11!!!!! You show great wisdom my little french fry. ;P Couldn't agree with you more. @dkotuckerhttps://www.blogger.com/profile/18395598913393994830noreply@blogger.com