tag:blogger.com,1999:blog-2644538309673050572.post8954726704184897922..comments2024-03-28T05:52:50.399-04:00Comments on Autism with a side of fries : Where are you? Eileen Shaklee http://www.blogger.com/profile/04658354442888448425noreply@blogger.comBlogger25125tag:blogger.com,1999:blog-2644538309673050572.post-33136986062586277412016-01-28T11:45:59.595-05:002016-01-28T11:45:59.595-05:00Katie, that was beautiful.Katie, that was beautiful.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-41474369400756408952016-01-26T20:36:48.897-05:002016-01-26T20:36:48.897-05:00I loved this, my son is 18 and we get all kinds of...I loved this, my son is 18 and we get all kinds of crazy looks when we are out at like Walmart and he is flapping his hands and singing how deep is your love. I love it. Anonymoushttps://www.blogger.com/profile/11884446003962881434noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-3877523093097436232016-01-26T20:36:29.505-05:002016-01-26T20:36:29.505-05:00I loved this, my son is 18 and we get all kinds of...I loved this, my son is 18 and we get all kinds of crazy looks when we are out at like Walmart and he is flapping his hands and singing how deep is your love. I love it. Anonymoushttps://www.blogger.com/profile/11884446003962881434noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-30251318606677109152016-01-26T15:42:56.543-05:002016-01-26T15:42:56.543-05:00I get a lot of this from my kid's friend's...I get a lot of this from my kid's friend's mothers. Yes he's got friends, yes he goes on play dates, yes I know they are only trying to say it's no big deal. Except sometimes it is a big deal, usually after he's come home and it's all been too much.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-29436796547643133052016-01-26T14:29:45.693-05:002016-01-26T14:29:45.693-05:00You have pretty much just described my son. He is ...You have pretty much just described my son. He is 6, diagnosis of asd adhd spd etc at 5. I have pulled him out of school to homeschool for the exact same reasons, meltdowns running etc. He desperately wants friends but behaves exactly as you have described, like he's on crack...everything you have just described, it's like you're describing my little boy... Autism, Rainbows and a bag full of Gobstoppershttps://www.blogger.com/profile/17625350251164241181noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-46962130246293530232016-01-26T14:28:47.855-05:002016-01-26T14:28:47.855-05:00I always get the he looks normal if he didn't ...I always get the he looks normal if he didn't have a 504 I won't even know he's autistic. My son is 16 and my mom lives with us, unfortunately she just got married to a man who refuses to become educated on autism and I am constantly getting the get him in like and stop those tantrums. It infrerates me.Anonymoushttps://www.blogger.com/profile/14539244952740069056noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-57550820515498138572016-01-26T11:54:49.539-05:002016-01-26T11:54:49.539-05:00Thank you for this. So many friends and family thi...Thank you for this. So many friends and family think I'm making it up, because my son is wicked smart and loves to be around people. "Can't be autism." Really? Because he's above grade level in school and likes the company of others, he's "normal" in their eyes. Ha! I hate having to explain so I don't anymore. He's only 10, and I hope my not explaining him to others shows him he doesn't need to explain himself either.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-57103468137463762612016-01-26T11:51:03.386-05:002016-01-26T11:51:03.386-05:00This is why I love the saying "When you'v...This is why I love the saying "When you've met one child with Autism, you've met one child with Autism"Anonymoushttps://www.blogger.com/profile/10486304531369243757noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-6727969839313145502016-01-26T09:15:17.577-05:002016-01-26T09:15:17.577-05:00Kiddo sounds amazing. Who wouldn't protect th...Kiddo sounds amazing. Who wouldn't protect their child's identity if they are blogging to the whole world, in the hopes of a large readership? Duuuuh! Even the doctor who diagnosed my kiddo didn't pinpoint the exact place on the spectrum. And, now that we have another major health issue of his under control, another doctor says he's not sure where on the spectrum my kiddo will end up! And things change with therapy and as kiddo develops, so it really is fluid. Anonymoushttps://www.blogger.com/profile/06341638892738775028noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-84577309661247773392016-01-26T08:57:35.261-05:002016-01-26T08:57:35.261-05:00I feel you. Why do we feel the need to categorize...I feel you. Why do we feel the need to categorize our kids? We can say, "My kid has high functioning autism" and feel better because at least it's "not as bad" as the other kid? The truth is my kid outwardly doesn't look like he has a problem. He will even talk to other kids, laugh, do age appropriate things. The flip side is he can't tie his shoes, noises freak him out, change the rountine and we are in trouble. Autism comes out in all different ways, and we need to remember you don't have to prove (to autism moms at least) how "bad" your kid has it. We all understand.Jessica Millerhttps://www.blogger.com/profile/11162226837895451254noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-3597807389421080772016-01-26T08:42:43.856-05:002016-01-26T08:42:43.856-05:00I pretty much refuse to use labels. By the standar...I pretty much refuse to use labels. By the standards of other people, my son can fall under any category depending on the day. There are days when he is so verbal, you would think my 13 yr old was in college. Other days, he is pretty much nonverbal except for a few choice words that I won't repeat. I think people get caught up in functioning labels and can't see the individual child. Keep on keepin' on Mama Fry! Love your blog! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-76619211057907302002014-01-23T09:28:21.912-05:002014-01-23T09:28:21.912-05:00The school flat ARGUED with me and the Speech ther...The school flat ARGUED with me and the Speech therapist refused to see him any more because "he's too verbal to be autistic" and then "we think he is bipolar." When asked after numerous meltdowns and bolting episodes what we could do to make school successful--my boy says "put me in the library by myself to do my work." that wasn't an acceptable answer so we now home school. My boy builds complex machines, all symmetrical from every side, with well thought out implements, but he cannot tie his shoes or ride a bike. My son can name all bugs/insects as the flash across a screen and their defense mechanisms, but he can't remember sight words. My son loves kids, absolutely would kill for friends, but when in a social situation arrises the anxiety gets so much that he's like a kid on crack---aggressive, agitated, flighty. Its very very sad. But he's the first kid to help if someone is hurt; to make a gift for an ailing friend; to give his treasures to someone he admires.<br /><br />This is our autism----and I wouldn't change it. He's an amazing, witty, bright kid that drives me bonkers and keeps me laughing. <3EBBS AND FLOWS IN WEST TEXAShttps://www.blogger.com/profile/11183352927487071781noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-8363088626260778832014-01-22T10:01:08.725-05:002014-01-22T10:01:08.725-05:00I don't feel our kids would necessarily apprec...I don't feel our kids would necessarily appreciate their lives, and pictures splattered all over the internet for strangers. Strangers who don't understand their special place in society.<br />People who judge, or expect a behavior just because they know someone who knows someone with autism.<br />Good for you! Each child is so individual, and has their own mannerisms and we should count our lucky stars that we get to know them and we don't have to share them with our cruel world. A world that doesn't even try to understand or embrace their unique gifts.<br />Autism Unitedhttps://twitter.com/autismunitednoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-23292453026363843502014-01-16T09:49:36.607-05:002014-01-16T09:49:36.607-05:00You just put in to words how I feel about my daugh...You just put in to words how I feel about my daughter who is contradiction after contradiction (like myself) yet no matter how loud I yell, no one around me sees the issues I do the same way. <br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-64746853004234900792014-01-16T06:59:43.965-05:002014-01-16T06:59:43.965-05:00Husbands come round eventually, they start to see ...Husbands come round eventually, they start to see the little differences eventually. They sometimes struggle with not wanting their child to be anything other than perfect. ( mums know that they are perfect anyway )katiehttps://www.blogger.com/profile/00423070545082481016noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-58681294729486728962014-01-15T21:28:52.401-05:002014-01-15T21:28:52.401-05:00Unfortunately my husband and I have been having th...Unfortunately my husband and I have been having the same disagreement. Our son 5 is newly diagnosed, and those are the same arguments my hubby used. He is too social, too verbal. And I am like, but he won't shower or wear socks but can name any character in any movie and recite their dialogue....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-27511789246194235182014-01-15T14:59:04.138-05:002014-01-15T14:59:04.138-05:00Thank you for this. I am right there with you. Peo...Thank you for this. I am right there with you. People love to tell me how high functioning Finley is 5 minutes after meeting her and assuming I must be blowing things out of proportion or that she will just grow out of it. It is hard to put into words until like you said, come pick one of our kids up and spend the day with them. Saving this article and whipping it out next time someone attempts to categorize my daughter.Shaylahttp://parentingbytheseatofmypants.comnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-63904608832286046082014-01-15T13:43:33.594-05:002014-01-15T13:43:33.594-05:00Your boy is awesome. Clearly, the apple didn't...Your boy is awesome. Clearly, the apple didn't fall far from the tree. ;-)<br /><br />Seriously though, I hate that people think anyone of our autistic loved ones can be pigeon-holed into a "place" on the spectrum. We don't do that to neurotypicals with respect to our likes or strengths or fears or much of anything else-- except politics.<br /><br />And whoever thinks you need to prove anything to any of your readers about your kid? Pffft. I'm sure you can imagine the phrase I'm thinking... ;-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-47141754341460152692014-01-15T12:07:22.074-05:002014-01-15T12:07:22.074-05:00I love this.I love that you are naming all of his ...I love this.I love that you are naming all of his positive traits before his weaker areas. I love how you are celebrating him and loving him and letting him be a "kiddo" first,autism second.Great Job!<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-72855692315322961192014-01-15T11:47:06.679-05:002014-01-15T11:47:06.679-05:00That pretty much sums it up!!! He is a kid, all ki...That pretty much sums it up!!! He is a kid, all kids (people!!) come with a different set of abilities and disabilities. I have always tried to steer clear of the functioning label as well. I mean, what level of functioning as a human am I?!? High because I can run 5 miles, or low because I meltdown when I have to change something in my routine? If I can't label myself, why would I ever place another unnecessary label on any of my children? Love it!!!!! Niki Knighthttps://www.blogger.com/profile/02646633512355028546noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-19851668035013857672014-01-15T11:15:17.478-05:002014-01-15T11:15:17.478-05:00Omg my two favorite bloggers in the same “room.&qu...Omg my two favorite bloggers in the same “room." I love you both ladies! I am glad you posted this because we as your followers (most of us I see) follow you because you understand us and for once we can read your posts and understand you. It makes me feel human knowing there's people out there that understand what my situation is like. It makes me feel that I am not alone & not going crazy!!! People are so stupid sometimes, pictures or no pictures it's still awesome knowing YOU exist and you can relate! <3Solobettyhttp://solobetty.facebook.comnoreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-3311476175910503472014-01-15T10:52:13.945-05:002014-01-15T10:52:13.945-05:00I like the phrase "If you have met one person...I like the phrase "If you have met one person with Autism you've met one person with Autism!"<br /><br />My son is 19. He has multiple special needs including Autism. I get the look from people/educators/family all the time because they don't believe he is Autistic. He's too social and or too verbal. Trust me - if you live in our world you know he's ASD - from the sensory pieces to his perseveration on Hitler and Neo Nazi World War II history. A severely dyslexic kid who has read Shindler's List, can name the starting line up of the Bruins, can run music and movie categories in Jeapordy but who can't follow multi step directions or do 3rd grade math, A six sport star Special Olympic athlete who cannot/will not shower without signficant cueing and significant OT intervention. A young man who emceed a signficant Special Olympic find rasier in front of a crowd of people but won't ask for help in a store. <br /><br />Autism is as individual as our children's brains are. We need to respect that and support all parents and children in this community.Anonymoushttps://www.blogger.com/profile/06646885271564660190noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-10410267940329079782014-01-15T10:50:43.487-05:002014-01-15T10:50:43.487-05:00You are so blessed to have such a wonderful son!!!...You are so blessed to have such a wonderful son!!! I have a daughter who is somewhere on the rainbow but they can not pinpoint where she is and no matter how hard i try to explain her or give a "heads up" warning to anyone we come in contact with they think she is fine and is just babied too much. Have you ever come across that?Anonymoushttps://www.blogger.com/profile/02744620553578116640noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-72444886580002080342014-01-15T10:46:01.928-05:002014-01-15T10:46:01.928-05:00LOVE THIS!!
I've gotten that too. I was so h...LOVE THIS!! <br /><br />I've gotten that too. I was so heated that someone commented on a post that Norrin didn't sound like he had autism. And I get tired of being asked where he falls on the spectrum because I don't know. And honestly, I don't care. His 'place' on the spectrum doesn't matter and it shouldn't make a difference. He's just a sweet kid with an amazing head of hair :) Lisa Quinones-Fontanezhttps://www.blogger.com/profile/12967271037408176885noreply@blogger.comtag:blogger.com,1999:blog-2644538309673050572.post-36747613084419299922014-01-15T10:20:51.552-05:002014-01-15T10:20:51.552-05:00I have similar difficulties with Lily. Not so muc...I have similar difficulties with Lily. Not so much not knowing where she is on the spectrum...but being able to explain her issues as they relate to other kids on the spectrum. She's unique. Just like everyone else.Jimhttps://www.blogger.com/profile/11538573774184028004noreply@blogger.com