Means having to confirm with my husband if he put a kazoo in the dishwasher to be sanitized or was this just another quirk of the kiddo.
This autism life means that despite the fact my son is eight, my husband and I have far to many conversations about our son's poop.
This autism life means that despite a love of going out to eat, I will always feed the kiddo something before we go. Anything he eats at the restaurant will be a bonus. Why yes, please wrap up those leftover fries. They'll go down a treat for breakfast in the morning. Hash browns, fries, same difference.
This autism life means that I will have grown a thicker skin than I ever thought I could.
This autism life means still watching the same DVDs now as he did when he was two. In fact, some beloved ones will need to be replaced. Dammit Disney to Hell when they decide to put a flick back in the vault. Thank God for ebay.
This autism life means we will never have a lazy do nothing day. Every moment will be planned. Even on vacation.
This autism life means I will spend a majority of my life ferrying him around to various doctor and therapy appointments. Waiting rooms are my life. That's okay though. Standing around a soccer field when it's to cold out doesn't look like much fun anyway. Waiting rooms have cheesy magazines, Wifi, comfortable chairs and other parents in the ASD trenches to chat with. I think I handle that trade off.
This autism life means I will survive on less sleep than I ever knew a human could.
This autism life means we celebrate and cherish every little moment. Every little victory. Every little step in the right direction.
This autism life means we will also be brought to our knees in despair. We will be heartbroken when we least suspect it. When we see our child completely ignore another child on the playground. When we hear some jack ass use the slur "retard" out in public. When we wonder what the future might hold for our rapidly growing son.
This autism life means I will just brush myself off and try again tomorrow because I have no other choice.
This autism life will teach me I have thousands of friends that live in a computer and I wish I could share a side of fries with them.
http://www.disneystudioshelp.com/detail_TOPSUPP_DiscReplace__SUPPORT.html
ReplyDeleteOops, must've hit publish on accident. That link goes to info on how you can get Disney to replace broken or worn out DVDs and BluRays for $7 and $9 respectively. Pretty sure even movies in the vault can be replaced this way too.
ReplyDeletehttp://www.disneystudioshelp.com/detail_TOPSUPP_DiscReplace__SUPPORT.html
Three of my favorites...
ReplyDelete1. This autism life means we will bever have a lazy do nothing day. Every moment will be planed. Even on vacation....just experienced this.
2. This autism life means we celebrate and cherish every little moment. Every little victory. Every little step in the right direction...like today when Cali could repeat back to me our schedule for the day!!
3. This autism life means I will brush myself off and try again tomorrow because I have no other choice...and because if you don't, no one else will.
Another great post!
This autism life means that 20 years from now, your kiddo will tell you what you had for dinner, and maybe what you were wearing on New Year's Eve 2012/13. Even if he wasn't with you. No shit.
ReplyDeleteSo true. And amazing. <3 Mom T
ReplyDeleteThank you. :-)
DeleteLove, love, LOVE this post!
ReplyDeleteI just came across your site and I have to say I love your posts. You are right on with how I think. Thanks for sharing!
ReplyDeleteLove your blog! I am not a parent of a child with autism, but I am a sister...a much older sister than the sibling. So, I don't even pretend to know what I'm talking about parenting a child but I share the idea of loving one! Many days I want to scream out loud but every day I find myself grateful for her.....even if I have to remind myself how much I love her when she uses the couch as a toilet instead of the actual toilet.
ReplyDeleteBeen sitting here reading your posts for two days between "life moments". Sometimes my emotions are so involved I find that "I can't breathe catch in my throat" and a laugh at the same time.(you do experience that too?!) everything went to hell in a handbasket in June when our daughter with Down syndrome developed epilepsy. I don't know if its the meds or the epilepsy but without too much drama, I get it. I want to know, what is it about French fries?! Since June, any stressful situation, trip to the Dr, latest virus- you got it! She is signing "French fries". I never would have let me older 3 children eat this way, but its a sigh of relief when we can at least get her to eat French fries. If I wasn't laughing Id be crying. Sometimes it's both.
ReplyDeleteIf I hear one more one more person ask if my son is retarded I will be in jail. Love your blog!!
ReplyDelete