"The most important thing people did for me was to expose me to new things." Temple Grandin
If you don't know who she is, Dr. Grandin is the OG autism advocate. "A Loving Push", as she describes it. So I have and I will continue to do so because I have seen the difference this has made in my son's life. We've had success and we've had utter clusterfucks. I'll still keeping pushing though because the good outcomes are worth it. If it's good enough for Temple, it's good enough for The Kiddo.
I guess what you mean is I'm suppose to listen to autistic people but only ones you agree with.
Today I was told that I should not talk about any co morbid issues that come with autism during autism awareness month. However, for the life of me I have yet to meet an autistic person that did not have any other co morbid issues or challenges. Not to mention, isn't the point of awareness to clue folks in that autism comes with other issues? If we don't talk about these challenges now, exactly when are we suppose to address these needs? I will talk about these challenges this month and I will talk about these issues always. If we don't talk about them, that's how the one sided stereotype of autism in the media and general knowledge will continue. Yeah, not on my watch.
So if you want to go around doing that, feel free. I'm not.
Today I was self involved to air my feelings publicly. Well Jeez Honey, any writer of a blog knows that already. You're not exactly telling me anything that I don't already know. Blogging, for the most part, is pretty self indulgent. I suspect you are concerned about "What if he read it one day?". Fair enough and here's my response to that. If my son can read this blog and understand it, all of it and get completely pissed off, I will sing "Amen and Hallelujah!". I will be absolutely thrilled that he was finally able to develop the comprehension needed to do so. It will mean years of therapy, education, medical intervention, blood, sweat, and more tears (Mostly my own.) than I can count actually worked. It will be validation that we actually made the right choices in his care and upbringing. It will mean he is an independent, free thinking, self reliant person who is able to take care of himself.
That's all this autism mom could even hope to happen. I will gladly pay for his future therapy bills and you can go about yelling "I told ya so." all you want. I'll be happy AF!
Today I was told my son wasn't autistic enough. I will add this to the times I have been told he simply too autistic to participate in activities and school environments. All these years I have been living this Team Quirky lifestyle with him and now I find out there are levels of autism. Well color me surprised! Is it like the difference between a Muggle and a Mudblood in the wizarding world? Cause this Harry Potter fan can totally follow that.
Is Autism SPECTRUM Disorder some sort of video game with different levels my Kiddo has to earn? Is there an app for that? Color me confused here but I thought the "Spectrum" part in the name meant there was more than one way to be with autism.
Today I was told by my son that he loves me and that is the only thing I ever worry about hearing. Feel free to keep telling me how I'm doing it wrong. I mean, that's how this self involved blogging thing works. I write. You comment. It's the circle of lifeeeeeeeeeee...
Today I am kind of glad it's the last day of Autism Awareness Month. Bet you are too since I just spent the past thirty days screwing it up. ;-)
Playing a little piano with the sheet music upside down. As you do.